Morgan Barrett

Adult with CF

Morgan lives with her husband, Kory, and twin toddlers, Alder and Winslow, in rural northeast Kansas where she enjoys gardening and chicken-keeping. She has many interests and is always entertaining her curiosity, but her mainstays are spending time outside, reading, writing, photography, and cultivating a relationship with plants. She grew up with two younger siblings, Allison and Mason, who also live with CF. You can follow her on Instagram where she shares about her life with CF and millennial nostalgia.

Blog Posts

Morgan and her husband kneeling with their twin toddlers, wearing Great Strides t-shirts

It’s been years since I’ve attended a Great Strides walk, but this year I decided it was time to introduce my kids to the CF tradition that meant so much to me growing up.

June 4, 2025| 5 min read

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to managing my CF needs.

Nov. 4, 2024| 6 min read

Morgan smiling with her twin toddler sons

I was recently reminded of what my life used to be like before Trikafta^® — and I immediately felt guilty for forgetting. But maybe it’s OK to let go of the past and embrace a future of hope.

May 2, 2024| 5 min read

Morgan sitting on a bench outside with her two twins.

I have learned a lot about myself in the three years since I started Trikafta^®. Even though I am healthier, I feel less connected to the cystic fibrosis community and my care team.

March 30, 2023| 5 min read

Morgan and her husband smiling holding their twins outside.

After opening up a time capsule that I put together when I was 7 years old, I decided to write my childhood self a letter, explaining how great her life is when she is 30.

Aug. 16, 2022| 6 min read