Rachel Koren

Former Public Policy Specialist, Cystic Fibrosis Foundation
Rachel Koren Headshot

As a public policy specialist at the Cystic Fibrosis Foundation, Rachel focused on federal policies from Congress and federal agencies such as the U.S. Department of Health and Human Services, the National Institutes of Health and the Food and Drug Administration. She reviewed and analyzed laws and regulations to assess how they may have affected CF research and access to care for those with CF, and worked with her team to ensure the strong voice of the CF community is heard in Congress. Rachel hails from New Orleans, La., and prior to joining the Cystic Fibrosis Foundation, she studied behavioral genetics and creative writing at Washington University in St. Louis.

Blog Posts


As Congress weighs budget appropriations, we look at long-term funding for the National Institutes of Health. We decided to sit down with the Foundation's senior vice president of research affairs to learn more about why the work being done at NIH is so important in the search for a cure for CF and other serious, rare diseases. 

| 5 min read