The impact of cystic fibrosis on a parent and child relationship is both unique and everchanging. As I've grown into adulthood, my mother and I have learned new ways of talking about this illness and have seen more clearly how it affected us in the past. Now, more than ever, I'm learning a large part of being cared for is caring for those who have cared for me.
Tannaz Motevalli is an Iranian-American artist, writer, and researcher living in Baltimore, MD. She works full-time as one of the exhibition coordinators for the History of Medicine Division's Exhibition Program at the National Library of Medicine in Bethesda, Md. She is also pursuing a master's degree in library and information science at the University of Maryland, College Park. Outside her career, Tannaz enjoys singing, crafting, cooking, and spending time with her human and feline friends.
As an individual with cystic fibrosis, I can give you all kinds of examples of how providers shouldn't treat their patients. However, it was my experience as a fictional patient that taught me how to be a better CF patient.