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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Jennifer smiling with her son.

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Coping With My Late Diagnosis

I was diagnosed with cystic fibrosis late; and the anger I felt was contagious for my son, who was dealing with his own diagnosis. But, I found support and am now focusing on the things in my life that I can control.  

Jennifer Albright
| 5 min read
Carolyn standing outside with an IV pole wearing a mask.

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Raising Young Children While Frequenting the Hospital For CF

When my four children were young, it was important for my husband and me to protect their sense of security. We did what we could to reduce their fears about my frequent hospital visits and even make it fun for them at times. 

Carolyn Ottke-Moore
| 7 min read
Tara smiling with her partner.

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Fear of Living Life Fully After Transplant

I’m still trying to define who I am after a double-lung and liver transplant five years ago. Although I am much healthier, I sometimes still struggle with my physical and mental health, and I don’t know what I want to do next in my life.

Tara-Goodwin-Headshot
| 8 min read
Nathan smiling sitting on a bench outside in front of a stone wall.

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Tips on How to Support Your Partner With CF

After my partner was diagnosed with cystic fibrosis, I had to learn how to support her and keep myself from getting rundown. Over time, I have learned that doing small things, such as ordering medicines, can be enormously helpful. 

Nathan Brown
| 4 min read
Tania laying in her hospital bed after transplant.

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My Mental Health Post-Transplant

Being in and out of the hospital and unable to recognize my own body was taking a toll on my mental health. But after my liver transplant, my family stuck by my side and helped renew my positive outlook on life. 

Tania Romero
| 7 min read
Ainsley smiling at the hospital with an oxygen tube.

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How Listening to My Body Led to My CF Diagnosis

At 26, I was in and out of the hospital with bouts of pain and coughing up blood, with doctors telling me I had pancreatitis. It took a trip to a new hospital — and advocating for my health — before I finally got my correct cystic fibrosis diagnosis.

Ainsley Doherty
| 5 min read