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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Kasey standing in front of a chalk mural that is a picture of rainbow wings.

BLOG

The Best Reluctant Decision I Ever Made

I resisted being listed for a lung transplant; but now, almost six years later I’m thankful — especially to my donor — for my new life.

Kasey Raffensperger headshot
| 10 min read
Lindsey pregnant smiling with her husband.

BLOG

What I Learned While Trying to Get Pregnant

The journey my husband and I traveled while trying to conceive our son was stressful but ultimately fruitful. Here’s what I learned during that process.

Lindsey Tipsword headshot
| 8 min read
Amanda laying down on a hospital bed smiling.

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What I Wish I Would Have Known Before Trikafta

Although I had been told that my coughing would stop, I wish I had known more about the transformative change that Trikafta® would have on my life. It has almost made me wistful for the time when I was sick, back when I was more in tune with what my body was experiencing.

| 6 min read
Meagan standing outside of an RV.

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A Look at the Pandemic Then and Now

I’ve had to make many changes in response to the COVID-19 pandemic to protect my health. Not all the changes were welcome, but now that I’ve adjusted, I’m enjoying my new normal.

Meagan-Tenyer-Headshot
| 5 min read
Kelsey Scott making silly faces with her son.

BLOG

9 Ways to Support a Family With a Child With CF

There are many ways you can support a family with a child or children with cystic fibrosis. Educating yourself about the disease and its treatments and offering to help without being asked are some of the best ways you can show you care.

Kelsey Scott Headshot
| 7 min read
Larissa in a hospital gown hugging her son after her lung transplant.

BLOG

Redefining Myself After Lung Transplant

A life with cystic fibrosis taught me how to be sick. After a lung transplant, I had to learn how to be well.

Larissa Marocco headshot
| 7 min read