The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Although it took me a while to gravitate toward yoga, I have found that it really helps me manage my mental and physical health. In honor of International Yoga Day on June 21, I share the benefits of practicing yoga and demonstrate my favorite upper body stretches.
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When I turned 29 last year, I told my family that I was going to attempt a 24-hour fitness challenge to mark my 30th birthday -- an age I wasn't supposed to reach. Despite having cystic fibrosis, I am determined to inspire hope and highlight the importance of fitness when it comes to CF.
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Exercise has been an important part of my life all my life. Here are some tips I have developed along the way.
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In 1986, I decided to walk across America to raise awareness of CF. Positivity, my martial arts training and the people I met kept me going.
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After turning 60, I decided to mark the milestone by creating a “living list,” 60 things I could do to raise awareness and money for cystic fibrosis care.
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I kept at riding because every time my lungs would get tight, I thought of people with CF who would give anything to be out of breath just because they were riding up a hill.
