The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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With COVID-19, a year indoors -- and online -- has brought up a familiar feeling that screen time has the potential to bring us hope and laughter. On the other hand, the internet can also convince us that the sky is falling.
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I spent 2020 in COVID-19 quarantine and in the hospital separated from my family while waiting for transplant. I'm very grateful that the call came and I have new lungs -- and a new life.
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I was prepared to experience side effects when I was vaccinated against COVID-19, and -- although they were significant to me -- I knew that it was my immune system strongly responding to the vaccine.
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Although many believe COVID-19 vaccines will allow for a return to normal for some, unanswered questions leave me wondering what “normal” will be.
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Watch a panel of experts discuss COVID-19 vaccines through the lens of cystic fibrosis.
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The hope that came with the authorization of two COVID-19 vaccines has been coupled with anxiety and frustration as I wait.