The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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After careful thought, I decided to add medically prescribed cannabis to my care regimen. After using it for six months, I've noticed an improvement in both my mental and physical health.
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Getting a double-lung transplant has been a life-changing journey. Along the way, I've had to deal with changes in my mental health and the struggle to keep my survivor guilt in check.
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As a person with cystic fibrosis, I struggled all my life to gain weight, despite eating a high-calorie, high-fat diet. Once I started Trikafta® and my weight increased to normal levels, I had to learn a new, healthier way to eat.
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I'm glad I finally got diagnosed with bipolar disorder. It doesn't mean I'm “crazy.” Sometimes, your brain gets sick just like your lungs do.
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The challenges of living with cystic fibrosis can sometimes be overwhelming. When I hit rock bottom, I found that my faith in God restored me and has helped sustain me through difficult times.
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Being born prematurely and facing a lifelong disease could have made me bitter and angry for my whole life. While there are some bad days mixed in, I have, instead, made it my goal to always be kind and considerate to the people in my life.