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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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How I Got My Toddler to Wear a Mask

Before my daughter's most recent clinic appointment, I took to social media and asked for tips on getting your child to start wearing a mask. Here's what worked for us.

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April 23, 2018 | 5 min read
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Trusting My Community With the Ultimate: My Son’s Care

Although it's painful, my commitment to the military in Afghanistan will help me honor my commitment to keeping my son, Cohen -- and the rest of my kids -- healthy.

Lesley-Lykins-Headshot
April 19, 2018 | 5 min read
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4 Tips for Balancing Motherhood With CF

As a new mom, it can be difficult to balance motherhood with maintaining your cystic fibrosis care. Here are four tips that made my journey as a new mom with CF a little easier.

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April 17, 2018 | 5 min read
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How a G-Tube Unlocked My Son’s Potential

After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren't prepared for was the difference it made in his health, energy levels, and personality.

Jaclyn-Strube-Headshot
March 22, 2018 | 5 min read
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How I Balance My 2 Children's Different Needs

When our daughter was born with cystic fibrosis, we knew that our older son's brotherly duties would be more complex than we had originally anticipated. But, as our family has grown, I have complete faith that while their needs may be different, the love we give these two amazing children will always be the same.

Kate-Johnson-Headshot
Feb. 21, 2018 | 4 min read
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How I Decided on a G-Tube for My Son

My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.

Jaclyn-Strube-Headshot
Jan. 23, 2018 | 6 min read