The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Before my daughter's most recent clinic appointment, I took to social media and asked for tips on getting your child to start wearing a mask. Here's what worked for us.
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Although it's painful, my commitment to the military in Afghanistan will help me honor my commitment to keeping my son, Cohen -- and the rest of my kids -- healthy.
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As a new mom, it can be difficult to balance motherhood with maintaining your cystic fibrosis care. Here are four tips that made my journey as a new mom with CF a little easier.
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After deciding to get a gastrostomy tube for our son, my husband and I made sure he was prepared for the procedure. What we weren't prepared for was the difference it made in his health, energy levels, and personality.
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When our daughter was born with cystic fibrosis, we knew that our older son's brotherly duties would be more complex than we had originally anticipated. But, as our family has grown, I have complete faith that while their needs may be different, the love we give these two amazing children will always be the same.
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My husband and I tried everything to encourage weight gain in our young son to no avail; so we chose to get him a gastrostomy tube.