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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Daniel Pachas

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Not Letting CF Hold Me Back From Traveling

After starting on Trikafta®, I finally became able to travel without getting an immediate exacerbation when I returned home. Now, I am relishing the opportunity to travel abroad, while taking every precaution necessary to protect myself from the pandemic.

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| 4 min read
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Top 10 Tips for Road Trips With Your Child With CF

Traveling with a kid with cystic fibrosis is better if you plan ahead, get organized, and create a schedule -- but always be able to roll with the punches if that schedule changes.

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| 7 min read
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Living the Island Life With CF

I decided that I wanted to live on the Caribbean island that I grew up on. Although it takes some planning and work, I'm thriving there.

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| 7 min read
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Traveling With CF: Plan Ahead, Be Flexible, and Accept Help

After three surgeries to fix a collapsed lung, I still managed to travel abroad. It took a lot of planning, help from family and friends, and simply not caring about what other people think.

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| 7 min read
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No-Stress Travel Tips for People With CF

If you have cystic fibrosis, don't waste your strength on the travel leg of your vacation. Save your energy for the fun stuff by asking for help when you need it.

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| 4 min read
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7 Tips for Taking a Vacation Without Your Kid With CF

Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.

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| 6 min read