The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Although it took me a while to gravitate toward yoga, I have found that it really helps me manage my mental and physical health. In honor of International Yoga Day on June 21, I share the benefits of practicing yoga and demonstrate my favorite upper body stretches.
July 21, 2017
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3 min read
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As a teenager with cystic fibrosis, I always felt that my body was different, and therefore, shameful. But in one day, I had a change of perspective that allowed me to love myself and appreciate how far I've come in my journey with CF.
July 18, 2017
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5 min read
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Shortly after my fiancée, Ashley, told me about her cystic fibrosis, we were engaged. Months later, she passed away, leaving me to figure out what I could have done differently and how to cope.
July 10, 2017
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5 min read
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I may not have chosen to have cystic fibrosis, but I did get to choose my outlook on life and -- ultimately -- my perspective.
April 13, 2017
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4 min read
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Not having a roadmap for life wasn't a problem when I thought I wouldn't be around long enough to take the trip. A double lung-transplant has me rethinking this belief.
April 12, 2017
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5 min read
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I never imagined that I would see cystic fibrosis as something to be grateful for. But now, in my 23rd year of life, I am thankful that CF has allowed me to open up about my struggles through spoken word poetry and find freedom in shared humanity.
March 31, 2017
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2 min read