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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Breanna Ragland smiling in a bean bag chair with her dog in her lap next to her treatments.

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Being Diagnosed With ADHD Made Life With CF Easier

I recently was diagnosed with a type of attention deficit hyperactivity disorder, which helps explain why I sometimes didn’t keep up with daily care. By taking ADHD into account, I’m managing my cystic fibrosis better.

Breanna Ragland headshot.
Breanna Ragland
| 6 min read
Tiffany Rich Smiling at the Pool

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Adjusting to Life With CFRD

Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier.

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Tiffany Rich
| 5 min read
Jennifer-Chamberlin-And-Daughter-Featured-Rectangle

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How We Dealt With Our Newborn’s CF-Related Bowel Problems

Because my daughter's bowel perforated when she was a newborn, she needed to have surgery to temporarily reroute her stool so that it was collected through her abdomen into an ostomy bag. Those grueling days of ostomy care -- sometimes as often as every hour day and night -- were some of the darkest days of our cystic fibrosis journey.

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Jennifer Chamberlain
| 6 min read
Kara-Satalino-Daughter-Hospital-Bed-Featured-Rectangle

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What I Wish I Knew About Adrenal Insufficiency

I struggled when I learned that in addition to cystic fibrosis, my daughter also had adrenal insufficiency. I felt anger, sadness, and anxiety. But thankfully, with the support of my husband, family, friends, and care team, we learned how to manage her condition and deal with emergencies.

Kara-Satalino-Headshot
Kara Satalino
| 8 min read
Desiree-Cummings-Leah-Sleeping-Featured-Rectangle

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Managing Other Health Conditions With CF

It can be a lot to manage two children with cystic fibrosis who have other health issues. I made it work by making my children responsible for their own treatments and not sweating the small stuff when we can't be perfect.

Desiree-Cummings-Headshot
Desiree Cummings
| 4 min read
Meagan-Helmick-CFRD-Trikafta-Featured-Rectangle

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CFRD is the Cloud in My Trikafta Silver Lining

I have seen tremendous health gains since starting Trikafta. But control of my cystic fibrosis-related diabetes has been elusive.

Meagan-Helmick-Headshot
Meagan Helmick
| 5 min read