The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
BLOG
If you have cystic fibrosis, don't waste your strength on the travel leg of your vacation. Save your energy for the fun stuff by asking for help when you need it.
BLOG
Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
BLOG
With the holidays fast approaching, it's time to prepare for the change of schedule in your cystic fibrosis routine.
BLOG
When I decided to study abroad in 1974, I also decided that I would not allow CF to stop me from living my life to the fullest.
BLOG
During my five months in Denmark for a study abroad program, I not only learned more about myself and others, but I became more confident in my ability to take care of myself. Don't let CF stand in the way of experiencing that, or any other dreams.
BLOG
Hear how frequent flier Stacy Motenko keeps herself organized as she turns traveling with CF into a manageable affair.