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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Meagan and her husband and dog on a hike standing near a waterfall


Finding Normalcy After Transplant

When I lived with advanced lung disease, I never expected to feel good again. But after receiving a double-lung transplant, my whole world changed.

April 11, 2024 | 5 min read
Ashley smiling and pointing to her purple t-shirt, which features a white graphic of lungs


My Experience Leading Up to Transplant

As cystic fibrosis damaged my lungs, I did all I could to make it to my university graduation before I underwent lung transplant.

A headshot of Ashley Main
April 2, 2024 | 5 min read
Matison smiling in a hospital bed holding a plush toy in the shape of lungs


Voicing My Health Needs Before and After Transplant

I have faced the continuous need to self-advocate to manage my life with cystic fibrosis, particularly when facing complications post-transplant.

A headshot of Matison Deaton smiling outside
Aug. 24, 2023 | 7 min read
A portrait of Lauren with her husband and three children cuddling in bed.


The Importance of Self-Advocating After Transplant

My daughter, Lauren, didn’t know that having a lung transplant would greatly increase her risk for cancer until it was too late. Her death has taught me how important it is to know the health risks faced after transplant and our need to advocate for ourselves.

A professional headshot of Gerry Sweeney
May 26, 2023 | 6 min read
Molly Baker and her mother, Ann, sitting together at a formal dinner.


A Tribute to My Mom’s Selfless Dedication

My mom was always my biggest advocate and most selfless caretaker, but she went above and beyond when she also took my friend under her wing.

Molly Baker headshot.
May 14, 2023 | 7 min read
Portrait of Leslie Colwell and her immediate family


Living 26 Years Post-Transplant

In the 26 years since my double-lung transplant, I’ve lived through cancers and other post-transplant complications. It’s been difficult at times to remain positive, but I won’t give up. I’m a fighter.

Portrait of Leslie Colwell in black and white
April 11, 2023 | 6 min read