The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Having a spouse with cystic fibrosis can leave you focusing too much on their health and not your own. My weight loss journey taught me that even if it's not about him, it's not about me, either. It's about us.
Feb. 16, 2017
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4 min read
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When I finally broke things off with my ex Pablo, I soon met Frank the tank. Although Frank has been great throughout my process of waiting for a double lung transplant, I think I'm ready to take a step back and breathe on my own.
Feb. 14, 2017
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3 min read
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Just in time for Valentine's Day, we take a minute to look back on our top three picks for the most romantic blog posts last year.
Feb. 9, 2017
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4 min read
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Going on vacation without your child with cystic fibrosis can be hard, but here are some tips to help make it a little easier.
Jan. 18, 2017
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6 min read
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Check out my five favorite Instagram accounts to follow from the cystic fibrosis community.
Jan. 12, 2017
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3 min read
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How much are you willing to do for a loved one? The answer is simple: anything and everything, right? We advocate for them, make sacrifices to be with them and worry about them constantly. Last year I did all of this, but -- somehow -- still felt pangs of guilt.
Jan. 6, 2017
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5 min read