The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Thanks to COVID-19, a work furlough forced me to slow down the pace of my life and I'm okay with that. Here's how I've let go of needing to be productive during this time.
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Despite my diagnosis of cystic fibrosis, I show no symptoms and have an above-average FEV₁. I struggle more with survivor's guilt than I do with this disease.
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Being separated from my family while I was in college helped me expand my circle and create room in my heart for new relationships. My friends became my second family, and they have been there for me as much as any blood relative.
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Here is my advice to others who have just learned that their partner has a chronic illness.
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Navigating the intersection of transgender health care and cystic fibrosis care has had its ups and downs, but I've become an effective self-advocate and intermediary between my two health care teams.
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Losing my best friend and cystic fibrosis mentor was crushing. I had to learn to let myself grieve -- and do it offline -- to be able to cope with this loss.
