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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Fighting for the Perfect Body: A Healthy One

In a culture flooded with advertisements about the perfect body, secret weight-loss tricks and fad diets, our cultural ideals of weight are often skewed to an image that is far from healthy.

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May 23, 2016 | 5 min read
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Navigating the Limits of CF

I have found that the limits cystic fibrosis imposes on my life are a bit like weather forecasts -- open to unexpected changes. Whether by hard-fought scientific advances, thoughtful (personal) planning, creative thinking or sheer luck, many of the limits of CF now come with beautiful possibilities attached.

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April 26, 2016 | 5 min read
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How Bruce Lee Saved my Life

Watching a Bruce Lee movie inspired me to live my life on my terms.

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April 5, 2016 | 4 min read
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Healthy Attitude, Healthier Lungs

Growing up, Keenan Flynn rejected what he saw as negative messages surrounding cystic fibrosis. Keenan credits a healthy mental attitude, and a non-acceptance of the negative messages about his health, for his physical development.

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March 28, 2016 | 4 min read
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Invisible Scars: My Life Post-Transplant

Although my lung transplant was the end of one story, it was also the beginning of another, more difficult story.

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March 12, 2016 | 5 min read
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It's Possible to Find Hope Amidst the Loneliness and Isolation of CF

There are no easy remedies for the perpetual dance that the parents of a chronically ill child do to deal with the painful and enduring isolation. And personally, I found a sense of hopeless defeat.

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March 10, 2016 | 5 min read