CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Janeil smiling looking down at her baby.


What I’ve Learned About Breastfeeding With CF

Breastfeeding when you have CF is more complicated than it is for people who don’t have CF. Here’s what I’ve learned about it with my kids.

| 6 min read
Lindsey pregnant smiling with her husband.


What I Learned While Trying to Get Pregnant

The journey my husband and I traveled while trying to conceive our son was stressful but ultimately fruitful. Here’s what I learned during that process.

Lindsey Tipsword headshot
| 8 min read
Molly smiling with her mom and two sisters.


Why I Decided Not to Have Children

I grew up thinking I would never be able to have children because of my CF. While advancements in treatments have made motherhood a possibility for many, I ultimately made the painful decision to not have children.

Molly Baker headshot.
| 6 min read
Ryan Grass smiling with his wife and twin daughters.


When Are You Going To Have Kids?

On our journey to become parents, my wife and I experienced several disappointments and began to question the entire process. Meeting our daughters made it worthwhile.

Ryan Grass headshot
| 5 min read


What I Wish I Knew When I Was Pregnant With CF

When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.

| 5 min read


Becoming a Dad After Receiving a Lung Transplant

Because of the medications I must take as a result of my lung transplant, I thought it might be too difficult to conceive a baby through in vitro fertilization. I was wrong. I'm expecting a son in November.

| 4 min read