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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Shandra and her daughter holding hands and wearing black gowns outside

BLOG

How I Fulfilled My Dream of Graduating

I was determined to finish school and set a good example for my children. Along the way, I learned how important it is to have a strong support system to help manage the challenges that can come with cystic fibrosis while I pursue my dreams.

A selfie of Shandra Arceneaux
| 5 min read
A photovoice study participant embracing her toddler son.

BLOG

Understanding the Intersection of Parenthood and CF

Researchers from the University of Pittsburgh wanted to better understand the realities of parenting as a person with cystic fibrosis, so they collected firsthand accounts from members of the CF community.

A professional headshot of Olivia Stranksy
| 5 min read
Carolanne kissing her newborn.

BLOG

What the First Year of My Son’s Life With CF Has Taught Me

Accepting my son’s cystic fibrosis diagnosis has been a year-long journey for our family. I learned there is more to motherhood with a chronically ill child than meets the eye.

Carolanne Cimino
| 7 min read
Nicholas Kotowski Baby Sonogram

BLOG

Why We Chose Surrogacy After My Wife With CF Had a Lung Transplant

My wife and I opted for a surrogate to carry our child following her double-lung transplant. After five years of struggling with a bad surrogacy agency, we finally switched providers and found a surrogate who is now carrying our child.

Nicholas-Kotowski-Headshot
| 6 min read
Morgan-Barrett-Husband-Twins-Featured-Rectangle

BLOG

Trikafta Brought Me Twins

Because of the shortened life expectancy projected for those with cystic fibrosis, I was always cautious about the idea of having children. Those fears melted away after I started Trikafta® and received the greatest surprise of my life.

Morgan-Barrett-Headshot
| 7 min read
Melissa-Shiffman-Baby-On-Chest-Featured-Rectangle

BLOG

What I Wish I Knew When I Was Pregnant With CF

When I was pregnant in the early 2000s, there was little information available about cystic fibrosis and pregnancy, and I didn't even know what concerns to address with my providers. I am glad more women with CF have shared their family building experience.

Melissa-Shiffman-Headshot
| 5 min read