Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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James laying on the couch with his dog

BLOG

Coming Full Circle: Becoming a Genomics Scientist with CF

I have always been very interested in science, eventually leading to my career as a genomic scientist. My curiosity helped me cope with the uncertainties of cystic fibrosis, leading me to many academic, professional, and personal opportunities that gave me a more expansive view of how my different roles and identities can build upon one another. 

James-Lawlor-Headshot
| 10 min read
A screenshot of a group Zoom meeting with Kristina Robinson and twelve other adults with CF

BLOG

The Power of Meaningfully Connecting With Your Peers

Driven by a career in community health and a late cystic fibrosis diagnosis, I discovered my purpose through volunteering with the CF Foundation. Inspired by the power of connecting with my peers, I went on to develop my own program designed to support other adults in the CF community. 

Kristina-Robinson-Headshot
| 4 min read
Elizabeth Raglow and a friend smiling at a Breathe Hope table on their college campus.

BLOG

Realizing the Impact of My Volunteering

I began volunteering as a way to support my cousin with CF. But over time, I discovered the community and impact that can come from even the smallest efforts.

A professional headshot of Elizabeth Raglow
| 6 min read
An adult with CF reading a book while using her vest and nebulizer

BLOG

Works by the CF Community: Summer 2023

We’re highlighting three creators who are helping raise cystic fibrosis awareness. They’re voicing the variety of ways that people experience the disease by sharing a part of their life through their works.

A professional headshot of Sarah Dobson
| 4 min read
Joey smiling with his dog.

BLOG

How I Gained the Confidence to Share My CF Story

When the pandemic started, I started to feel lost and disconnected. That changed when I was introduced to a new program from the Cystic Fibrosis Foundation that taught me how to share my CF story with confidence. 

Joe Milteer
| 6 min read
Marian Schlosser Grandparents

BLOG

What We’ve Learned From Our Grandchild With CF

Our hearts stopped when we first heard that our grandson, Jase, had cystic fibrosis. We didn't even know what it was. However, we have learned a lot along the way and have gotten used to rolling with the ups and downs of this disease.

Jamie Schlosser Headshot
| 5 min read