The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Practicing meditation has helped me cope with many of the stresses that come with a life with cystic fibrosis.
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For the longest time, I did all I could to deny that I had cystic fibrosis. Eventually I came to own my CF.
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Growing up, the term “life expectancy” was always with me, affecting my choices and expectations. Over time, I learned to tune it out and live my life my way.
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Burkholderia cepacia took a toll on me physically, but overcoming the emotional blow was even more difficult.
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When I was young, I didn't think much about having cystic fibrosis. Over time, I realized how big of an influence it has on my life.
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Because so much rides on them, the pulmonary function tests (PFT) -- that are a part of every cystic fibrosis care center visit -- fill me with anxiety.