The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Getting a double-lung transplant has been a life-changing journey. Along the way, I've had to deal with changes in my mental health and the struggle to keep my survivor guilt in check.
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As a person with cystic fibrosis, I struggled all my life to gain weight, despite eating a high-calorie, high-fat diet. Once I started Trikafta® and my weight increased to normal levels, I had to learn a new, healthier way to eat.
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I'm glad I finally got diagnosed with bipolar disorder. It doesn't mean I'm “crazy.” Sometimes, your brain gets sick just like your lungs do.
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The challenges of living with cystic fibrosis can sometimes be overwhelming. When I hit rock bottom, I found that my faith in God restored me and has helped sustain me through difficult times.
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Being born prematurely and facing a lifelong disease could have made me bitter and angry for my whole life. While there are some bad days mixed in, I have, instead, made it my goal to always be kind and considerate to the people in my life.
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It's easy to fall into the trap of pitying ourselves and focusing on what is going wrong in our lives. Instead, spend your time looking for all the good things that are happening too.
