The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Spending summers at sleep-away camp helped me become more responsible, and allowed me to see CF clearly and accept it.
July 23, 2019
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5 min read
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Although I struggled with it during my childhood, I have come to appreciate the unique and loving relationship I have with my mother.
June 27, 2019
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5 min read
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It may seem odd to some, but I'm finding a bittersweet pleasure in taking care of my aging parents. As a 45-year-old woman with cystic fibrosis, I feel lucky to be alive and able to repay them for years of doctor visits and at-home treatments.
May 15, 2019
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5 min read
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Relationships can be tough no matter what. But I have found that when you have cystic fibrosis, relationships require these three elements.
May 8, 2019
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5 min read
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Being in touch with your emotions can be considered a negative when you're a guy. For me, it's been a tremendous help in dealing with my cystic fibrosis and the loss of my sister to this disease.
May 1, 2019
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6 min read
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I used to think that people would pity me and see me as weak, if I told them I had cystic fibrosis. Eventually, I learned that keeping this disease a secret was a burden I did not need to carry.
April 16, 2019
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4 min read