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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Jessica's son, Patrick, holding and biting a piece of therapy equipment in the hospital

BLOG

Navigating CF as Adoptive Parents

Adjusting to life after my newly adopted son’s cystic fibrosis diagnosis has been challenging at times, but I will do all I can to support and advocate for him.

Jessica Dean smiling and holding her son, Patrick
| 5 min read
Carolanne holding her baby, Bellamy, and smiling at the camera during a family photoshoot.

BLOG

Learning to Meet the Nutritional Needs of My Baby With CF

My son’s CF diagnosis created an unexpected challenge while breastfeeding him. But through practice, help from our care team, and support from the CF community, we found the perfect balance to meet his nutritional needs.

Carolanne Cimino
| 11 min read
Jessi's fiance smiling and holding their son, Oliver, who has CF

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Navigating my Son’s First Year With CF

I thought I was well-prepared to have my third baby boy, but when Oliver was diagnosed with CF, everything I knew went out the window. Though the journey has been isolating at times, my family has found our new normal with support from others in the CF community.

A selfie of Jessi Hutchens
| 7 min read
Bianca and her son, smiling and holding giant gold balloons that read, "18."

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Navigating Change as My Son Takes Charge of His CF Care

After being the primary caregiver to my son for so long, I was surprised by the many emotions that came with his transition to adulthood. But I’ve learned these complicated feelings are just an opportunity for us to grow closer.

A selfie of Bianca and her son
| 4 min read
Jamie and his daughter, Desi, standing in front of the school bus

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How I Manage My Daughter’s CF During the School Year

Preparing for the school year with cystic fibrosis involves careful planning and advocacy. Since my daughter, Desi, started school, I’ve learned about how to best prepare Desi, her teachers, and school administration to help ensure her education and health thrive.

Jamie-Roney-Headshot
| 7 min read
Shellie, her husband, and her newborn baby smiling together immediately after her C-section

BLOG

Tips For Parents of a Child With CF

We couldn’t wait to take our daughter home from the hospital. But when the time finally came to bring my daughter home, I began to lose confidence in myself as I tried handling all the medications and formula. With time, I built a great routine for my family and learned some tips and tricks to share with other new parents.

A selfie of Shelby Dimel
| 6 min read