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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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It's Not Easy to Confront the Emotional Toll of Living with CF

Some days, the biggest struggle I have is accepting that I have CF.

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March 8, 2016 | 4 min read
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Three Ways My Parents Helped Me Become a Positive Adult

There were three important things that my parents did for me while I was growing up that helped me become an independent and positive person.

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March 1, 2016 | 5 min read
Ali-Donahue-Beach

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Internalizing Feelings of Guilt with CF

There are a lot of misconceptions about illnesses. For one, you're supposed to look sick -- or like other people's perception of a sick person. Once I started to doubt myself and the gravity of my illness, I began internalizing a whole lot of guilt.

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Feb. 27, 2016 | 5 min read
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Losing a Parent and Caregiver

Starting at 6 months of age, I began my daily journey battling my chronic illness, cystic fibrosis. And now, at 28, my heart is heavy because one of my nearest and dearest caregivers passed away unexpectedly … my father.

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Feb. 24, 2016 | 5 min read
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No One Thought Less of Me for Having CF

Since everyone in my graduating high school class knew each other by name, I'm guessing that everyone knew that I had CF. But it was never discussed. Rarely did anyone bring it up to me or ask me any questions, and that was just the way I wanted it. 

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Feb. 11, 2016 | 5 min read
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A Different Meaning for the Word “Love”

When you have cystic fibrosis, the people in your life are heavily impacted by what you go through. And this love isn't limited to a companion or partner, but shines through friends, parents, siblings and caregivers.

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Feb. 11, 2016 | 3 min read