The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Taking a step back and taking a break from social media helped me to realize that it's okay to have a definition of health and wellness that looks completely different from anyone else.
Feb. 13, 2019
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5 min read
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After I was diagnosed with cystic fibrosis at the age of 21, I was eventually able to find a way to involve myself in the CF community by doing something I loved -- golfing. Along the way, I met some incredible people who showed me the importance of chasing the moment.
Jan. 29, 2019
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4 min read
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Friendships are an important aspect of life, but they are especially meaningful when you have a disease like cystic fibrosis. By finding a group of people who take the time to understand what I'm going through, I've been able to maintain a strong support system through the ups and downs of life with CF.
Jan. 16, 2019
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4 min read
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I am thankful for the relationships I have online with other people with cystic fibrosis. But the flip side of using social media is that I open myself up to the possibility of unkind words or feelings of sadness whenever I log in.
Jan. 8, 2019
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4 min read
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Hindsight is 20-20, so I wrote a note to my younger self to explain all the things I wish I had known when I was teenager coming to terms with my cystic fibrosis.
Jan. 3, 2019
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6 min read
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Although I asked for help to manage the physical aspects of my disease, it took a long time for me to feel comfortable asking for support for the emotional impact of cystic fibrosis.
Dec. 17, 2018
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5 min read