The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Cystic fibrosis is a complex disease that affects each person living with it differently. I think it's so important for us to learn to understand each other, so I've come up with things I wish others knew about me and my specific experiences with CF.
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Dating did not adequately prepare my husband for the mental toll that cystic fibrosis takes in your life; but he rose to the challenge in our first year of marriage, and I discovered the beauty of vulnerability.
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My girlfriend, Kassandra, is an adventurer who also happens to have CF. At the beginning of our relationship, I got to know how she lives with CF, and that's helped us plan out trips, as well as look toward the future.
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When I was younger, I thought my cystic fibrosis affected me and only me. I have begun to realize the emotional toll that CF also takes on my family and loved ones.
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With cystic fibrosis, it is easy to compare yourself to others and feel like your accomplishments are less impressive or significant than the people around you. Fortunately, I've found four ways that help bring me out of this mindset and set achievable, realistic, and fulfilling goals.
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Looking for the right partner when you are sick comes with so many challenges. Despite CF's obstacles, being patient and honest can help you find a healthy and loving relationship that is right for both of you.