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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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5 Things I Wish People Knew About My Life With CF

Cystic fibrosis is a complex disease that affects each person living with it differently. I think it's so important for us to learn to understand each other, so I've come up with things I wish others knew about me and my specific experiences with CF.

Morgan-Barrett-Headshot
Dec. 13, 2018 | 5 min read
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Navigating My Newlywed Life With CF

Dating did not adequately prepare my husband for the mental toll that cystic fibrosis takes in your life; but he rose to the challenge in our first year of marriage, and I discovered the beauty of vulnerability. 

Amye-Phinazee-Headshot
Nov. 8, 2018 | 4 min read
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Joining My Girlfriend on Her CF Journey

My girlfriend, Kassandra, is an adventurer who also happens to have CF. At the beginning of our relationship, I got to know how she lives with CF, and that's helped us plan out trips, as well as look toward the future.

Kevin-Klemenz-Headshot
Oct. 29, 2018 | 4 min read
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Anxiety: How It Affects More Than the Person With CF

When I was younger, I thought my cystic fibrosis affected me and only me. I have begun to realize the emotional toll that CF also takes on my family and loved ones.

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Oct. 16, 2018 | 4 min read
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Learning Not to Compare Myself to Others When Setting Goals

With cystic fibrosis, it is easy to compare yourself to others and feel like your accomplishments are less impressive or significant than the people around you. Fortunately, I've found four ways that help bring me out of this mindset and set achievable, realistic, and fulfilling goals.

Meagan-Tenyer-Headshot
Oct. 15, 2018 | 4 min read
Kassandra-Case-And-Boyfriend-Featured-Rectangle

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Having CF Doesn’t Mean You Have to Settle

Looking for the right partner when you are sick comes with so many challenges. Despite CF's obstacles, being patient and honest can help you find a healthy and loving relationship that is right for both of you.

Kassandra-Case-Headshot
Oct. 11, 2018 | 5 min read