The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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I remember the first time that I understood that cystic fibrosis made me different.
July 20, 2015
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6 min read
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Today, my son Eric turns 24. He has his own house. He has a career in finance at Merrill Lynch. He has cystic fibrosis.
July 17, 2015
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5 min read
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For adult with CF Brent Pace, staying healthy isn't about avoiding life. It's about living mindfully.
July 16, 2015
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2 min read
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Dr. Skach discusses the latest advances in CF research and exciting new approaches to address the underlying cause of the disease.
July 15, 2015
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4 min read
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CF Foundation Public Policy interns Shannon, Oakey and Erin share highlights from attending Teen Advocacy Day 2015, where 62 teens from across the country traveled to Washington, D.C., to meet with their Representatives and advocate on behalf of their siblings, friends and relatives with CF.
July 14, 2015
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2 min read
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When we set out to create the Foundation's new website, there was a lot we wanted to accomplish. Our goal was a modern, visually compelling CFF.org that provides more helpful information for the millions of people who visit each year. But we wanted to do something much more, too.
July 13, 2015
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4 min read