CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Vanessa smiling with her mom and dad standing outside.


How Family Relationships Have Grown Along With Day-to-Day Life

My parents made sure that I enjoyed my childhood despite my health struggles with cystic fibrosis. They focused on making sacrifices and hard decisions, such as relocating to be near my clinic, and never letting me brood over my prognosis.

Vanessa White
| 5 min read
Morgen sitting on a couch with a book open in her lap.


CF Can’t Stop My Creativity

Dance was my life, but I had to give it up when my health was in decline. I then found a new way to express my creativity through poetry.

Morgen Nudel
| 5 min read
Richard smiling with a waterfall in the background.


Not Being Prepared to Outlive Your Loved Ones

Throughout my life with cystic fibrosis, I never thought about the prospect that I would outlive my loved ones. Now that I have attended some of their funerals, the thought of my own mortality has caught up with me. 

Richard Caldwell
| 7 min read
Medora Frei doing a pulmonary function test at clinic in Minnesota.


Learning to Live With CF After a Late Diagnosis

I had never heard of cystic fibrosis until I received my diagnosis — but learning how to navigate my CF prepared me to advocate for my husband’s medical care and helped me grow as an artist.

Medora Frei
| 8 min read
David smiling outside with his wife and two children.


The Question Nobody Has Asked About My CF

I have answered questions from many about what cystic fibrosis is, but the question that I really wanted to address was: why do I believe I have CF?

David Cobb
| 5 min read
Morgan and her husband smiling holding their twins outside.


A Letter to Myself

After opening up a time capsule that I put together when I was 7 years old, I decided to write my childhood self a letter, explaining how great her life is when she is 30.

| 6 min read