CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Justin Goldsmith and his wife smiling


The Challenges of Becoming a Dad With CF

My wife and I knew that following our dream of having children would be difficult, but we would do whatever it takes to grow our family. Despite the challenges we’ve experienced on our in-vitro fertilization (IVF) journey, we will continue to fight to make our dream a reality.

A professional headshot of Justin Goldsmith
| 7 min read
An adult with CF reading a book while using her vest and nebulizer


Works by the CF Community: Summer 2023

We’re highlighting three creators who are helping raise cystic fibrosis awareness. They’re voicing the variety of ways that people experience the disease by sharing a part of their life through their works.

A professional headshot of Sarah Dobson
| 4 min read
Alex McCully flexing his arms in the reflection of a mirror


My Health and Fitness Journey

Although I admired bodybuilders when I was growing up, I thought pumping iron and building muscle was impossible with cystic fibrosis — so I didn’t even try. After a hospitalization, my passion for fitness was rekindled and I discovered I could build muscle mass and improve my health.

Headshot of Alex McCully
| 4 min read
A member of Kinley's care team wearing PPE and showing a toy to Kinley, who is sitting in a clinic room.


True Teamwork in CF Care

Since my daughter, Kinley’s, cystic fibrosis diagnosis, I have come to rely on her care team. We have become a true team in Kinley’s care.

A headshot of Krista Kuska
| 5 min read
A portrait of Lauren with her husband and three children cuddling in bed.


The Importance of Self-Advocating After Transplant

My daughter, Lauren, didn’t know that having a lung transplant would greatly increase her risk for cancer until it was too late. Her death has taught me how important it is to know the health risks faced after transplant and our need to advocate for ourselves.

A professional headshot of Gerry Sweeney
| 6 min read
Devanshi laying in the grass with a tree blossoming behind her


How CF Has Impacted My Mental Health

I struggled with my health for years until I was diagnosed with CF at the age of 19. After starting treatments, my physical health improved greatly, yet the scars on my mental health remain.

Headshot of Devanshi Dubey
| 6 min read