Blog

Interested in sharing your story? We want to hear from you. Fill out the CF Community Blog Contributor form to get started.

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Rebecca standing in a decorative fountain while traveling abroad, holding her arms out and smiling

BLOG

Tips For Traveling Abroad With CF

After traveling to over 20 countries, I’ve learned that cystic fibrosis doesn’t have to hold me back from experiencing life abroad. Here are some tips for traveling with CF.

A headshot of Rebecca Linam
| 8 min read
Brian smiling sitting on a mountain top.

BLOG

What Traveling Has Taught Me About CF

My experience traveling with cystic fibrosis has taught me that a chronic illness should never slow you down. It may require extra planning and packing, but it’s worth it and definitely doable.

Brian Donahoe
| 6 min read
Daniel Pachas

BLOG

Not Letting CF Hold Me Back From Traveling

After starting on Trikafta®, I finally became able to travel without getting an immediate exacerbation when I returned home. Now, I am relishing the opportunity to travel abroad, while taking every precaution necessary to protect myself from the pandemic.

Daniel-Pachas-Headshot
| 4 min read
Road-trip-child-with-cf-rectangle

BLOG

Top 10 Tips for Road Trips With Your Child With CF

Traveling with a kid with cystic fibrosis is better if you plan ahead, get organized, and create a schedule -- but always be able to roll with the punches if that schedule changes.

Shana-Bull-headshot
| 7 min read
Chelsea-Spruance-Underwater-Island-Living-Featured-Rectangle

BLOG

Living the Island Life With CF

I decided that I wanted to live on the Caribbean island that I grew up on. Although it takes some planning and work, I'm thriving there.

Chelsea Stahl Spruance
| 7 min read
Gabriella-Balasa-Traveling-Nebulizer-Featured-Rectangle

BLOG

Traveling With CF: Plan Ahead, Be Flexible, and Accept Help

After three surgeries to fix a collapsed lung, I still managed to travel abroad. It took a lot of planning, help from family and friends, and simply not caring about what other people think.

Gabriella-Balasa-Headshot
| 7 min read