The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Because I have cystic fibrosis, people are often shocked when I tell them that I'm a fire chief and an in-flight paramedic. Although the road has been difficult, I am driven to test my potential and fulfill my dreams.
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Throughout my 31-year-long career, I kept my cystic fibrosis a secret. Let me tell you why.
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I gravitated toward a career in health care almost without thinking about it. It has been rewarding, but it has cost me too.
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As a teacher with cystic fibrosis, I find it no surprise that heading back to school can be a shock to my system. But over the years, I've learned that if I can remember three main things, I can stay healthy through the transition back to school.
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When I ran into a particularly difficult situation with my last job, the “d” word entered my lexicon for the first time: disability. While my life doesn't look like I thought it would, I have come to accept where I am and gained a new perspective on work and life.
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After leaving a job where all of my colleagues knew that I have CF, I've chosen to stay guarded in my new work environment and not take the risk of telling anyone about CF, including my superiors.
