Blog

Interested in sharing your story? We want to hear from you. Fill out the CF Community Blog Contributor form to get started.

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Michelle-Patrovani-And-Sons-Featured-Rectangle

BLOG

Finding Peace With My Sons’ Diagnoses

Before we knew what to call it, cystic fibrosis had inflicted damage on the lives of my sons and me and left fear in its wake. Three years after my sons' late diagnoses, knowledge has calmed the storm and provided a measure of peace.

Michelle-Patrovani-Headshot-square
Oct. 5, 2017 | 4 min read
James-Holoubek-Daughter-Featured-Rectangle

BLOG

5 Ways I Help My Daughter Sustain Her Daily CF Care

When my wife and I found out that our daughter had cystic fibrosis, we decided to start maintaining a daily schedule for her CF treatment and care. Here are five ways that we uphold this routine and encourage our little girl to take an active role in her own care.

James-Holoubek-Headshot
Sept. 15, 2017 | 3 min read
Kimberly-Houston-And-Daughters-Featured-Rectangle

BLOG

Why Being a Mom of 2 Kids With CF Sometimes Means Watching Your Attitude

As the mother of two girls with cystic fibrosis, the time-consuming routine can wear down on you and cause frustration. Although CF can be challenging, it's important that I keep my attitude toward the disease in check because I know it will ultimately shape how my kids approach their lives with CF.

Kimberly Houston Headshot-Square
Sept. 6, 2017 | 5 min read
Julie-Lazzara-Daughter-School-Featured-Rectangle

BLOG

Tips for Sending Your Child With CF to Kindergarten

Sending your child to kindergarten for the first time is hard enough, but when your child has cystic fibrosis, it is even harder. Here's how I handled my daughter's transition to kindergarten and the lessons I learned along the way.

Julie-Lazzara-Headshot
Aug. 31, 2017 | 5 min read
Elise-Free-Abi--Outdoors-Featured-Rectangle

BLOG

Balancing Life as a Single Parent to a Child With CF

As the single parent of a child with cystic fibrosis, life is a difficult balancing act. That's why, sometimes, I feel a bit like Jean-Claude Van Damme.

Elise-Free-Headshot
Aug. 23, 2017 | 5 min read
Lisa-Greene-Kids-At-School-Featured-Rectangle

BLOG

What My Children Taught Me About Explaining Their CF

As a frequent public speaker, I was surprisingly nervous the day before I spoke to my kids' classmates about the realities of cystic fibrosis several years ago. Luckily, my kids knew just what to say to calm my nerves.

Lisa Greene Headshot_square
Aug. 22, 2017 | 5 min read