Blog

They say it takes a village, and this is especially true when you are a single mother of two who also happens to have cystic fibrosis. Single parenthood as a person with CF can be crazy, but being okay with asking for help can make it easier.

CF demands a parent's time, but childhood lessons taught me that all of my children need my love and attention.

When my 8-year-old daughter with CF found out that the disease is potentially fatal, I was grateful for her optimistic views on life and death. But deep down, I was saddened with the thought of a cure being so far away that I wouldn't be around to see it. Today, my fears have dwindled. 

You may be surprised to learn that this year, my husband and I celebrated the two-year anniversary of our son's CF diagnosis. How is it possible to celebrate a day that brings me so much pain to remember, you might ask? Because it's a milestone.

At a CF care center visit, I realized that I needed to step back so my daughter could step forward. 

Before I had my son, I had organized my life in such a way that everything flowed in orchestrated harmony. But I found that as he grew I allowed his needs to eclipse my own, and my life soon fell out of balance.