Blog

My husband and I had always seen ourselves raising our family in a small western town. But after our daughter Annie was born and diagnosed with cystic fibrosis, we realized that we might have to let go of the rural life that we had imagined.

After my newborn son was diagnosed with cystic fibrosis, I had to take another look at the contents of my diaper bag. There are now five things that I am almost never without when we leave the house.

I often think about the woman who will eventually marry my son. I think about what she is doing right now and what her life is like. Although I can't wait to meet her, at this point, I'm also sad thinking about not being the number one woman in Major's life.

There are no easy remedies for the perpetual dance that the parents of a chronically ill child do to deal with the painful and enduring isolation. And personally, I found a sense of hopeless defeat.

There were three important things that my parents did for me while I was growing up that helped me become an independent and positive person.

Our daughter's airway clearance treatment with the vest went more smoothly after we learned a few tricks.