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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Making In-Person Care Center Visits a Priority Despite the Pandemic

Even though it was scary, I made attending medical appointments during the pandemic a priority.

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Maura Corcoran Wozniak
| 5 min read
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My Return to In-Person Clinic Visits

After several months of telehealth visits with my care team, I returned to the clinic for an in-person visit. Because of COVID-19, some aspects of the visit were different than before.

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Michelle Herpolsheimer
| 5 min read
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What I’ve Learned From 11 CF Care Centers in 21 Years

As a military spouse who makes frequent moves, I have had to transition to new cystic fibrosis care centers 11 times in 21 years. Here are three things I have learned to make each changeover work.

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Jacqui Sjoberg
| 5 min read
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My Experience With Telehealth

COVID-19 has introduced telehealth appointments to my cystic fibrosis care. I've learned that advocating for myself is even more important when my care team and I can't be in the same room.

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Lydia Sand
| 3 min read
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Creating a Smooth Transition to Transplant Clinic

Since starting the transplant journey, I have learned many things, run into many roadblocks, and been left shocked by other issues.

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Paul Merritt
| 5 min read
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How I Coordinate My Care With 2 Different CF Clinics

When it comes to my cystic fibrosis care, some might say that my situation is a bit unique. Although having not one -- but two -- CF care teams can be challenging, I strongly believe that has made me a better, smarter, and more engaged patient.

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Megan Lepore
| 5 min read