CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
Kirsten Michelle Cills speaking into a microphone


How Comedy Helped Me Cope With CF

Growing up with cystic fibrosis was often lonely, but discovering how to make myself and others laugh helped me navigate those years and gave me a purpose in life.

Kirsten Michelle Cills headshot
Kirsten Michelle Cills
| 8 min read
Emma Selden in the Hospital


Letting Go of People Who Didn’t Accept My CF

When I was in high school, I tried my best to hide my CF from my friends. When this put my health at risk, I knew I had to find friends who would accept me and to become a better advocate for myself.

Emma Selden Headshot
Emma Selden
| 7 min read
William Ryan Smile


Ableism and CF

At various points in my life, I have faced ableist comments or reactions to my cystic fibrosis treatments, which have greatly affected me. I hope this blog post makes people more aware of the language they use toward people with chronic illnesses.

William Ryan Headshot
William Ryan
| 7 min read
Micah Baker Hiking Solo


Bonding Over Breathing

When my wife convinced me to undertake a hike up to Angel's Landing, I pictured the physical challenge of it, not the friendship we would develop with another couple on the way up.

Micah Baker
| 6 min read


11 Haikus to Help You Laugh About CF

I always say that when life gives you lemons … turn around and write some Japanese-style poetry. I hope you enjoy these haikus I have written about life with cystic fibrosis.

Tara Goodwin
| 2 min read


How CF Impacts My Relationship With My Daughter

Despite my cystic fibrosis, my relationship with my daughter continues to grow stronger each time we are together. She doesn't care about what I can or can't do physically. She just loves me unconditionally.

Andy Drooker
| 3 min read