The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Some days, the biggest struggle I have is accepting that I have CF.
March 8, 2016
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4 min read
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There are a lot of misconceptions about illnesses. For one, you're supposed to look sick -- or like other people's perception of a sick person. Once I started to doubt myself and the gravity of my illness, I began internalizing a whole lot of guilt.
Feb. 27, 2016
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5 min read
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Starting at 6 months of age, I began my daily journey battling my chronic illness, cystic fibrosis. And now, at 28, my heart is heavy because one of my nearest and dearest caregivers passed away unexpectedly … my father.
Feb. 24, 2016
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5 min read
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Positivity and the opportunity to be around for the “long haul” are what motivate Dana Curry to do her daily treatments. Hear Dana's top tips for staying on top of her CF treatment plan.
Dec. 14, 2015
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2 min read
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My emotions are constantly evolving through this journey with cystic fibrosis. And while I might feel like I am filled with sadness at times, my life is still very full.
Dec. 7, 2015
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4 min read
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In our newest “Living Today” video, Andy Lipman, 42, describes how he's created a positive spin on coping with a life-shortening disease.
Nov. 20, 2015
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1 min read