Blog

As an adult with cystic fibrosis, I am used to being the patient and having someone take care of me. However, the roles were reversed when my then-fiancé needed surgery. Striking a balance between taking care of him and myself was difficult but necessary.

The reward for trying to look your best -- even when you are sick -- shouldn't be people questioning whether you really have a serious illness. People with cystic fibrosis and other chronic illnesses need support and kindness, not second guessing.

The convenience of growing up and living in a small town is that everyone knows your cystic fibrosis story. But, moving to a new city doesn't mean you have to greet everyone with a monologue about your illness. Wait until CF creates an opening.

Running amidst the beauty of the Kansas countryside helps improve my lung function and mood and has even kindled a passion inside me for the environment.

Cystic fibrosis has been a challenge to me, but I've been able to blossom nevertheless.

Using social media helps me cope with raising a child with cystic fibrosis, but I have to remember that it's not just my story I'm sharing. Here's how I make sure I share the right parts of my son's CF journey.