The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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The cystic fibrosis community is a pretty spectacular bunch, whether you are living with this disease or helping to raise awareness and funds every day to fight for a cure. I'm excited to highlight a small sampling of the remarkable things you are doing in support of people with CF.
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Many of us experienced powerful moments during last year's virtual BreatheCon event. We hope you'll join us for this year's BreatheCon that will allow you to share your struggles and triumphs with other people who have CF.
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Weeks after my son was diagnosed with cystic fibrosis, I knocked on my local chapter's door to ask what I could do to make a difference.
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Reaching new milestones in my life as a 24-year-old with cystic fibrosis -- graduating college, starting my career -- has been rewarding, but it's never been easy. The opportunity to share my experiences and learn from others is why I'm thrilled to help people with CF connect at CF MiniCon: Young Adult on July 22.
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I never realized how important it was to share my family's story of cystic fibrosis until I started participating in Teen Advocacy Day. This experience helped me find my voice.
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Members of the cystic fibrosis community can have an even greater say in research when they vote for the Insight CF questions they most want answered. Readers have until June 21 to vote.
