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While my husband and I are learning more about raising a daughter with cystic fibrosis, we don't let the occasional humorous moments pass us by. Being able to laugh about certain things lets us know that we have come a long way.

While I would have never asked for cystic fibrosis to enter my life, there is not a single day that goes by that I do not thank my lucky stars that I have the Foundation on my side.

There have been a few moments over the past four years that have provided us with perfect opportunities to give both of our kids a fuller understanding of the multifaceted nature of cystic fibrosis.

As parents of kids with CF, we can make a life-transforming difference by focusing as much on their mental health as we do on their physical health. If you think your child's CF is taking an emotional toll, asking yourself these questions may help.

"Moving up." Those are the words I choose to use instead of using the word "died." To me, "moving up" represents the next stage where we go, in another form, in another life. I don't believe that love ends and I never say goodbye.

As a CF mom, I'm always in a state of wonder about whether the choices I'm making are the right ones for my son with CF and the rest of the family.