The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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My life after a 2011 lung transplant was going along smoothly -- until chronic rejection and the wait for new lungs while hospitalized took me to my physical and emotional limits.
June 26, 2018
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7 min read
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Stress, lack of sleep, and constant interruptions make spending time in the hospital physically and emotionally exhausting. But for me, it's just as difficult to come home from a hospital stay and get back to “real life.”
Dec. 15, 2017
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3 min read
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Calling an inpatient stay “ideal” may sound like an oxymoron, but having the things I need to be in better health by the time I head home from a hospital stay is important.
Aug. 9, 2017
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4 min read
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I’ve learned over the years to speak up and ask questions when it comes to my cystic fibrosis care.
Jan. 10, 2017
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5 min read
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As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
June 2, 2016
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4 min read
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Hospital stays are hardly a party. But since they're a part of life with CF, let's get the most out of them and help ourselves make them fewer and farther between.
April 7, 2016
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5 min read