The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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Living with cystic fibrosis, your dreams for the future can be a little hazy. But while attending my grandmother's 90th birthday celebration recently, I was struck by an image of myself that I had never seen before: myself in the distant future.
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Having cystic fibrosis can be a full-time job -- especially when you already have one. Here are some of my tips for managing work, life and a busy schedule with CF.
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As a social worker who specializes in helping adults with cystic fibrosis, I realized several years ago that there's a connection between intimacy and sexuality, and the successful management of a daily CF treatment plan. By "partnering with your partner," you can work together to enhance your relationship and minimize the barriers to your care.
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As the spouse of a woman with cystic fibrosis, there is a fine line between being a husband and caregiver. Although CF can add stress to our relationship, I've learned that sometimes the best thing we can do is simply step back and enjoy each other.
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This is my story about when I met a man who showed me kindness, support, trust and compassion in a way that I had never known, and how I explained my CF to him -- on my own terms.
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These days when I post in any CF group, I read my posts several times over, making sure that I'm not incentivizing bullies to jump all over them. It's a shame that I have to waste hours each week concerning myself with how someone will interpret something I write.