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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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Pursuing a Career in Radio and TV Despite My CF

For the most part, I have been fortunate with my cystic fibrosis in that I never needed to go into the hospital. But, that all changed in 2008. Fortunately, I was able to start using Kalydeco. My health improved, and I was able to continue my career in radio and TV.

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Ryan Wiggins
| 6 min read
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Disability is a Reinvestment, Not a Defeat

Although I resisted it at first -- and wrestled with what it said about my worth as a person -- going on disability has helped me become healthier, happier, and more fulfilled than I was when I was working.

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Aubrey Kostelec
| 5 min read
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Getting in Shape: How CF Led Me to My Dream Job

Growing up with cystic fibrosis made me feel different and like I had a lot to overcome. The road that led me to my own personal training business showed me that CF has shaped me in good ways.

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James Richardson
| 5 min read
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Why I Decided to Take Time Off From Work

Taking time off from work to focus on your health is never an easy choice. Here is the story about how I made this decision, as well as some tips and advice for navigating working with cystic fibrosis.

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Jackie Price
| 6 min read
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Understanding the Science of CF Gives Me a Sense of Control

As both a researcher and a person with cystic fibrosis, it is an amazing experience to watch cells with rare CF mutations respond to drugs in the lab. Knowing the scientific basis for my treatments not only gives me a sense of control, but it encourages me to do my treatments.

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Tré LaRosa
| 4 min read
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I’m a Fire Chief, Paramedic, Army Combat Medic, and Student … and I Have CF

Because I have cystic fibrosis, people are often shocked when I tell them that I'm a fire chief and an in-flight paramedic. Although the road has been difficult, I am driven to test my potential and fulfill my dreams.

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Rick Stevens
| 4 min read