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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives -- the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

More community posts
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How I Avoid Making Different Meals for Each of Our Family Members

Cooking for a family of three -- one of us with CF and all of us having different diets -- makes mealtime complicated. It's taken some time, but I finally found the key to satisfying our whole family's needs at dinnertime.

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Rebekah Brooks
| 5 min read
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What It’s Like to Experience Food Insecurity as a Person With CF

Food insecurity is a widespread problem that also touches the cystic fibrosis community. I should know -- I have experienced it myself and had to accept government assistance to buy food.

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GM Brown
| 8 min read
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How I Found Acceptance for My Trikafta Weight Gain

As a person with cystic fibrosis, I struggled all my life to gain weight, despite eating a high-calorie, high-fat diet. Once I started Trikafta® and my weight increased to normal levels, I had to learn a new, healthier way to eat.

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Lauren Bombardier Weeks
| 7 min read
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My Son's Feeding Therapy Journey

My son has had a problem with eating ever since he was born prematurely and diagnosed with cystic fibrosis. After a lot of stress and anxiety about reaching his weight goals, we finally enlisted an occupational therapist, who helped him learn to love eating.

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Melissa Thorpe
| 8 min read
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Dealing With Body Issues as a Teen With CF

Although your teenage years can be difficult, they ultimately help mold you into the person you are meant to be -- especially when you have a chronic disease, like cystic fibrosis.

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Gabrielle Hagen
| 5 min read
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Changing How I Eat Post-Transplant

After my lung transplant, I discovered I couldn't keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.

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Jenavese Armstrong
| 5 min read