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Life isn't always full of happy moments. Some are heartbreaking and some are crushing. But through it all, the life Kari and I shared together were the happiest moments of my life. I wouldn't trade them for anything. They were worth every second.

Google has made it easy for everybody to research cystic fibrosis, but CF is only part of my story and how I tell it is up to me.

I try to think of age as just another number. But as a spouse to someone living with cystic fibrosis, these numbers are frightening to me.

There are many people in the cystic fibrosis community whom I believe possess hero-like qualities that I admire and who inspire me in my everyday life. I feel so fortunate for having crossed paths with them, and I very much look forward to meeting many more in this journey that I call life. 

I often think about the woman who will eventually marry my son. I think about what she is doing right now and what her life is like. Although I can't wait to meet her, at this point, I'm also sad thinking about not being the number one woman in Major's life.

There are no easy remedies for the perpetual dance that the parents of a chronically ill child do to deal with the painful and enduring isolation. And personally, I found a sense of hopeless defeat.