The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Having an atypical presentation of CF means I stand somewhere between the CF world and the rest of the world — and that makes me feel like I belong in neither.
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After I received a letter from my transplant donor's mom, I hurried to respond, anxious to learn more about the woman who gave me new lungs and her family.
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I have been fortunate enough to connect with my donor. The connection between us runs through her mom. It all started with her letter to me.
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After my lung transplant, I discovered I couldn't keep eating the typical high-calorie CF diet. By learning to practice mindful eating, I have found a new way to enjoy my food.
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Facing the challenges of cystic fibrosis is something no one should have to do alone. Fortunately, I have been able to rely on my support system to give me strength when I wasn't sure if I'd be able to continue the fight.
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My life after a 2011 lung transplant was going along smoothly -- until chronic rejection and the wait for new lungs while hospitalized took me to my physical and emotional limits.
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You may or may not have seen the video of the woman taking her first breath as her breathing tube is removed following her lung transplant. That was my fiancée, Jennifer.
