The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
Dr. Jennifer Taylor-Cousar is passionate about bringing attention to health inequities in cystic fibrosis. By partnering with the CF Foundation, other organizations, and the CF community, she believes we can work together to create equitable health outcomes for everyone with CF.
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All my life I wanted an answer to why I was so sick. Then I got it, in the form of a CF diagnosis.
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Although not part of my son's “official” care team, our local pharmacist plays a key role in his cystic fibrosis care.
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CF care centers have worked hard to improve health outcomes. A new initiative seeks to improve the quality of our experiences at care centers.
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As a hospital administrator, I try to apply what I've learned from receiving care as a person with CF to provide better health care for my patients.
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Each time we meet, I am reminded that quality improvement in CF care cannot happen without the insights of people with CF and their families.
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Sometimes, being the “squeaky wheel” is the only way to make a positive change.