CF Community Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Josie giving her roommate a piggyback ride, both smiling at the camera

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CF & Vulnerability in College
July 2, 2025 | 6 min read

Going to college while living with cystic fibrosis carries its unique challenges. One of these is learning to be vulnerable about CF with others. But as I learned to be open, I discovered that CF did not build up walls to community — it opened doors. 

A headshot of Josie Praytor
Noah playing Mahjong in the hospital with his grandmother

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How My Filipino Heritage Guides Me Through CF
June 27, 2025 | 5 min read

A recent hospitalization reminded me that my strength to fight cystic fibrosis is deeply rooted in my Filipino heritage and the unwavering support of my family. 

A headshot of Noah Abesamis
Lily Harrington hiking in front of a mountain vista

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Managing CF and OCD
June 25, 2025 | 4 min read

Growing up, it wasn’t my cystic fibrosis that fueled my anxiety — it was the checklist of mental tasks I believed would prevent disaster. It wasn’t until adulthood that I learned this behavior is actually obsessive-compulsive disorder (OCD).

A selfie of Lillian Harrington
Jack riding a bicycle on a rural road

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My Ironman Journey With Cystic Fibrosis
June 24, 2025 | 6 min read

Training for an Ironman race is no easy feat, especially when living with cystic fibrosis. But I'm more determined than ever to push my limits, make my younger self proud, and prove to others that nothing is impossible.

A headshot of Jack Stoutenberg
Tosha Wise, her husband, and their two toddlers sitting on a blanket in a field

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What I’ve Learned as a Mom With CF
June 23, 2025 | 6 min read

Finding a balance between motherhood, my career, and personal priorities while managing cystic fibrosis has taught me the importance of open communication, especially when life feels overwhelming, so I can fully show up for my family, my work, and myself. 

A professional headshot of Tosha Wise
Mindy and her sister Jill wearing matching t-shirts that read "50 and fabulous"

BLOG

My Journey Through Late Diagnosis
June 17, 2025 | 6 min read

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life. 

A professional headshot of Mindy Gorman-Plutzer