CF Community Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Aaron Trimble standing on the steps of Capitol Hill with three other members of the Program for Adult Care Excellence (PACE)

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Advocating for My CF Patients on Capitol Hill
May 1, 2025 | 5 min read

As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF community.

A professional headshot of Aaron Trimble
Jacqueline's two children sitting next to each other on a couch, holding up a hand drawn sign that says "helping us."

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Caring for My Children With CF — And Learning to Care for Myself
April 29, 2025 | 6 min read

When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental health. It was then when I truly understood how vital it is for caregivers to protect their own well-being.

A professional headshot of Jacqueline Capriotti
Lesly smiling and holding her baby, Elara

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Advocating For CF Awareness in the Latino Community
April 23, 2025 | 7 min read

As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine.

A professional headshot of Lesly Beatley
Anne wearing a graduation cap and smiling next to her husband

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Balancing My Career Aspirations and Growing Family With CF
April 22, 2025 | 6 min read

I achieved my dreams of becoming a veterinarian and growing my family, all while navigating highs and lows with my cystic fibrosis.

Anne holding a white puppy and wearing a face mask
Pete smiling in a tuxedo next to his wife, who is wearing a wedding dress

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The Challenges and Triumphs of Aging With CF
April 21, 2025 | 6 min read

Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.

A professional headshot of Pete Proimos
Carter Jones smiling and wearing a three-piece suit and sunglasses

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How CF Shaped My Relationships With Others
April 9, 2025 | 5 min read

Growing up with CF created emotional and physical barriers that complicated my friendships and romantic relationships, but I’ve learned how to hold on to the people who truly support me.

A headshot of Carter Jones