The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.


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As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF community.


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When my two children were diagnosed with CF, our lives were overtaken by treatments, hospital stays, and endless medications. The strain wasn’t just physical — it also deeply affected our mental health. It was then when I truly understood how vital it is for caregivers to protect their own well-being.


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As a Latina mother of a child with cystic fibrosis, I aim to raise CF awareness and combat stigma in the Latino community by advocating for understanding, care, and support for families like mine.


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I achieved my dreams of becoming a veterinarian and growing my family, all while navigating highs and lows with my cystic fibrosis.


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Growing older with CF is an unexpected, sometimes miraculous, and often daunting journey. But for all the challenges it brings, it also means we are redefining what it means to live with CF.


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Growing up with CF created emotional and physical barriers that complicated my friendships and romantic relationships, but I’ve learned how to hold on to the people who truly support me.
