CF Community Blog

Interested in sharing your story? We want to hear from you. Fill out the CF Community Blog Contributor form to get started.

CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

Search More Community Posts
Mindy and her sister Jill wearing matching t-shirts that read "50 and fabulous"

BLOG

My Journey Through Late Diagnosis
June 17, 2025 | 6 min read

After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life. 

A professional headshot of Mindy Gorman-Plutzer
Chelsea's toddler, Parker, smiling in a hospital bed holding a stuffed animal

BLOG

Our Introduction to CF as New Parents
June 12, 2025 | 7 min read

Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.

A headshot of Chelsea Fry
A selfie of Nikki while wearing a nasal cannula

BLOG

Living With CF While Homeless
June 10, 2025 | 5 min read

Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself and for my kids.

A selfie of Nikki Melchiorre
Madison holding a nebulizer on her daughter's face and smiling

BLOG

Why I Speak Up About My Mild CF
June 5, 2025 | 5 min read

Because I have a mild form of CF, I used to think that raising awareness and advocating were roles best suited for those more affected by the disease. But when my daughter was diagnosed with CF, I realized every voice matters and all of us need to fight for a cure.

Madison Patterson
Morgan and her husband kneeling with their twin toddlers, wearing Great Strides t-shirts

BLOG

Introducing My Kids to Great Strides
June 4, 2025 | 5 min read

It’s been years since I’ve attended a Great Strides walk, but this year I decided it was time to introduce my kids to the CF tradition that meant so much to me growing up.

Morgan-Barrett-Headshot
A young toddler wearing a Great Strides fighter t-shirt, standing in a field supported by his dad

BLOG

Calling for Expanded Prenatal Testing
May 30, 2025 | 6 min read

My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.

A headshot of Roxanne Goforth