The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
BLOG
June 17, 2025
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6 min read
After seeing the impact of my sister’s cystic fibrosis throughout my childhood, my late CF diagnosis, while difficult, has brought healing, strength, and a renewed sense of purpose to my life.
BLOG
June 12, 2025
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7 min read
Navigating my newborn’s CF diagnosis during the height of the COVID-19 lockdown was one of our hardest moments — yet it was only the beginning of a journey filled with unexpected joy and hope.
BLOG
June 10, 2025
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5 min read
Living with cystic fibrosis while facing homelessness has tested me in every way. However, through it all, I’ve found strength, purpose, and the unshakable belief that I must keep going — for myself and for my kids.
BLOG
June 5, 2025
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5 min read
Because I have a mild form of CF, I used to think that raising awareness and advocating were roles best suited for those more affected by the disease. But when my daughter was diagnosed with CF, I realized every voice matters and all of us need to fight for a cure.
BLOG
June 4, 2025
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5 min read
It’s been years since I’ve attended a Great Strides walk, but this year I decided it was time to introduce my kids to the CF tradition that meant so much to me growing up.
BLOG
May 30, 2025
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6 min read
My son’s cystic fibrosis diagnosis blindsided me after negative prenatal screening. More effective genetic testing would have given my family the chance to prepare.
