The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
BLOG
May 22, 2025
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6 min read
When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes.
BLOG
May 20, 2025
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5 min read
Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community.
BLOG
May 13, 2025
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4 min read
Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.
BLOG
May 5, 2025
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8 min read
After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to truly connect with and support my patients.
BLOG
May 2, 2025
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8 min read
Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of strength, resilience, and a commitment to live life fully despite the challenges.
BLOG
May 1, 2025
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5 min read
As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF community.
