CF Community Blog

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CF Community Blog

The CF Community Blog is written by the community, for the community. It's about sharing our experiences, reflections, and perspectives — the good days, the bad days, and all the tough and wonderful things in between. With topics ranging from emotional health to treatments, the blog is a platform to share your unique story.

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Lauren Harvey standing in her backyard holding her golden-colored dog

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I Thought I Had CF Under Control. Then I Was Diagnosed with CF-Related Diabetes
May 22, 2025 | 6 min read

When I moved away for college, I was determined to prove that I could manage my CF all by myself. But I was thrown for a loop when I was unexpectedly diagnosed with CF-related diabetes. 

A headshot of Lauren Harvey
Katelyn Garcia laying in a hospital bed and giving the camera a thumbs up

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My Journey Through Two Double-Lung Transplants
May 20, 2025 | 5 min read

Undergoing two double-lung transplants before the age of 22 was never something I thought I would face. But through the ups and downs, I found motivation in giving back to my community.

A professional headshot of Katelyn Garcia
Katherine and her cousin with CF at a Great Strides walk

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Why I Stride
May 13, 2025 | 4 min read

Growing up, I participated in Great Strides in honor of my cousin who has CF. Today, I stride with even more purpose — now for my son, who was diagnosed with CF.

A professional headshot of Katherine Salimi
Alora and a classmate wearing PPE and giving the camera a thumbs up

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How CF Shaped My Career in Respiratory Care
May 5, 2025 | 8 min read

After gaining control of my health with Trikafta, I decided to pursue a career as a respiratory therapist. That’s when I realized that my own health journey had given me the empathy and compassion to truly connect with and support my patients.

A professional headshot of Alora Ciaramitaro
Isaiah kneeling with flowers near his mother's grave

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What My Mother Taught Me About Life With CF
May 2, 2025 | 8 min read

Watching my mother struggle with cystic fibrosis until she ultimately passed away was heartbreaking. I never knew anyone with CF other than the two of us. However, she instilled in me a deep sense of strength, resilience, and a commitment to live life fully despite the challenges.

A headshot of Isaiah Jones
Aaron Trimble standing on the steps of Capitol Hill with three other members of the Program for Adult Care Excellence (PACE)

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Advocating for My CF Patients on Capitol Hill
May 1, 2025 | 5 min read

As a CF physician, I recently had the opportunity to advocate on Capitol Hill for the first time. This experience deepened my commitment to my patients and gave me a powerful new way to support the CF community.

A professional headshot of Aaron Trimble