For the Burnetts, Supporting the Search for a Cure is a Family Affair

When he isn't with his family or at work, Jeff Burnett can be found leading a team of 30 cyclists and training for the Cystic Fibrosis Foundation's CF Cycle for Life event.

June 21, 2015 | 2 min read
Dora Nagy

When he isn't with his family or at work, Jeff Burnett can be found leading a team of 30 cyclists and training for the Cystic Fibrosis Foundation's CF Cycle for Life event in Atlanta.

The husband and father of two rides for his daughter, Sutton Grace, who was diagnosed with CF when she was just five days old.

Today, Sutton is 2 and she is thriving. But her short life hasn't been without complications. The toddler has been hospitalized five times and spends nearly two hours each day completing treatments that help clear the thick, sticky mucus from her lungs.


A Cure for All

“Sutton has this incredible ability to touch people's hearts,” Jeff said. “As soon as people meet her, they ask us what they can do to help.”

Jeff and his wife, Brittany, are never shy about answering. Through Jeff's cycle team and Great Strides, the couple encourages close friends and family to join them in raising funds. Over the last two years, they have raised more than $100,000 to help support the mission of the CF Foundation.

“Everything we do, we do for Sutton and for all families affected by this terrible disease,” Jeff said. “Through our chapter and our involvement with the community, we've formed strong bonds with other CF families. We're all in this together, and we want to do whatever we can to help find a cure for all people with CF.”

Learn more about how you can help Sutton and all people with CF.

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

Share this article
Get Involved

Dora previously worked at the Foundation as a writer and editor. During her tenure, she loved to listen to others share their memories and experiences, and consumed storytelling in all of its different forms. She constantly looks for the uniqueness in everyone's story. Dora has a B.A. in communications from the University of Maryland, College Park, and an M.S. in public policy and administration from the London School of Economics. Born in Budapest, Hungary, Dora was raised mainly in the Washington, D.C., metropolitan area where she currently resides today.

Recent Community Posts
My Long Journey to a CF Diagnosis
Blog | 10 min read
Finding Stability in the Unknown
Blog | 6 min read
Advocating for Health Equity in Cystic Fibrosis
Blog | 6 min read