Starting a Dialogue: The CF Community Blog

An inside look at the inspiration and purpose behind our new CF Community Blog.

July 24, 2015 | 2 min read
Abigail Eshbaugh

A lot has changed about the way we communicate since the last time we fully redesigned the Foundation's website in 2006. Technology has revolutionized the way we use the Internet (smartphones anyone?) -- and the face of cystic fibrosis has changed -- in some ways, dramatically.

CJ, 19, passes time on his smartphone while doing treatments.

We are seeing more people with CF living into adulthood. The challenges they face are new to a generation that never thought they would live to see these important milestones: What is it like to attend college with cystic fibrosis? What does it mean to start a family? How can I safely train for a marathon?

If you haven't already, check out Piper Beatty's blog post, "Community: Found," where she talks about how the uncertainty of facing a lung transplant inspired her to start a blog of her own. She wanted to connect with others who had been through it before.

And that's where the idea for the CF Community Blog comes in. The mission of this blog is to be a space where all in the community can share their experiences, inspire others and get real about what it means to live with this disease in the 21st century.

You told us that CF is tough, but that the CF community is tougher.

You told us that this community lifts you up and understands your truth better than anyone. We want this blog to be a space where the CF community -- people living with CF, their families, their friends, their care teams -- comes together to share and learn from our collective experiences.

We can't wait to see what the coming years bring.

What topics would you like to see covered on this blog?

This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited to people with CF and their families, belong solely to the blog post author and do not represent those of the Cystic Fibrosis Foundation, unless explicitly stated. In addition, the site is not intended as a substitute for treatment advice from a medical professional. Consult your doctor before making any changes to your treatment.

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About the CF Foundation

In her work for the Cystic Fibrosis Foundation, Abigail led online communications efforts and was responsible for directing the overall strategic direction of online communications. Abigail earned her master's degree in digital communication from Johns Hopkins University and her B.A. in communication from The Ohio State University. Follow @abigail_e on Twitter.

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